Another one of the fab charities we try and support is
Alexander Devine Children’s Hospice Service which supports children with
life-limiting conditions and their families.
Lucy, our community children’s nurse, is an Alexander’s nurse and will
provide respite care for Jessica should we need it, as well as visiting
regularly to check her sats and weight.
The information leaflet for parents and carers produced by Alexander
Devine has one of my favourite photos of Jessica taken at the children’s
Christmas party in 2012. It shows her
with a duck hat on her head and a big smile on her face.
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